PainOnline.com

2 Responses to “Survey, Please resubmit”

1. April 28th, 2006 at 1:11 pm #Terry

   I have been wondering if there is a way that I could submit a second survey and not mess up your analysis system. When I filled out my first one it was within a month of my diagnosis of CP…since then (about a year and a half) I have become educated on how to describe my central pains and could submit a survey that would be more specific.

   Thanks for this website. I couldn’t have made it this far without the wisdom of those who have “walked” this path before me and the hope that researchers who have published here give me. I’d like to give whatever I can back.

   T

2. May 4th, 2006 at 7:33 pm #Debbie Kelsoe

   Okay guys I am reaching the suicidal stage with this pain. Bare with me this is a long one.

   I was injured in 2000 a C5/C6 incomplete quad. Due to return of some sensation and function I am now a C7. Starting in November 2005 I had my first two bedsores due to a harness I wear to exercise. I also starting experiencing intense central nervous system or neuropathic pain along with diaherra around the same time. I have been tested for every conceivable problem including:

   Blood tests - all normal
   Colonoscopy - normal
   Stool samples - normal
   Gall bladder Ultrasound - normal
   Liver Enzymes - normal

   I take Vicodin for the pain and it has no effect. I am trying to get to a pain management center but have to wait for all the different doctors to fax my records. My bedsores are almost healed but I can’t take this pain anymore.

   At least 3 to 4 times a week I wake up with lower abdominal cramps. My body from the neck down but especially my hands, triceps, stomach, and legs are either frozen or on fire. This is accompanied with intense cramps and electrical shocks. I’m sick to my stomach and it feels like there is a strap tightening around my stomach and ribs that feel like my ribs are going to break. I still have the diaherra and have lost at least 30 more pounds since November. I have an appointment with my gastro doctor to have him scope my throat and stomach as he did in 2003 when he found ulcers in my throat and stomach. My stomach constantly gurgles.

   When I last visited the ER due to the intense pain I thought maybe it was my gall bladder or liver. After waiting 8 hours to be seen they said they were both normal. I literally cried because I was hoping they would tell me it was my gall bladder and at least I would have an answer. The only relief I received that night was the nurse gave me a full syringe of Dilaudid (sp?) that at least made me loopy enough that I just didn’t care about the pain.

   Has anyone experienced this type of pain or symptoms before? This is going on 7 months now with the worse episode being today. I would have some type of this pain over the last 5-1/2 years but it used to be much more sporadic. What’s worse is it seems none of the doctor’s knows or care what is causing this and it’s so hard to explain to them. I went to a neurologist about a month ago and he kept trying dopamine, which had no effect. I tried Lyrica and it only intensified the pain.

   I’m running out of options and courage. Any comments would be helpful.

   Deb
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   I just posted a very long post on my pain. I thought the appointment I’m trying to get with the pain management center was going to be my godsend. After reading your post - I’m scared to death that they won’t help. Dr. Young why aren’t there specialists out there that know about central nervous system pain and are willing to help!!!

   This is nuts. I guess the medical community won’t start paying attention until we start killing ourselves and posting in our local newspapers which is where I am right now with this pain. As a matter of fact I am going to write my newspaper and title it, “No One Knows and No One Cares.”